What is Charcot Marie Tooth – CMT?

I get this question from a lot of puzzled Doctors after they view my medical history.

I was diagnosed genetically with Charcot Marie Tooth around the age of 8, but my mum always noticed something was off with my walking. I had a lot of signs…

• high arched feet
• muscle atrophy
• muscle aches from standing and walking too long
• muscle and foot soreness
• random tingles every now and then on my legs and arms

Here is a bit more about Charcot Marie Tooth (CMT)

A detailed page about CMT and Here is a great video

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited neurological disorders, affecting approximately 1 in 2,500 people! It IS that common, some people have no idea they have it. Until they happened to find a Doctor that knows about it, or find their own research online or joins a CMT Facebook group!

I am extremely lucky I am not severely affected by it as some, because CMT can vary from almost non-existent to constant physical and emotional agonising pain.

This video is a great funny explanation – You know you have CMT… and here is a video about How CMT shows

CMT can mostly be explained as an Invisible Illness. I know myself having a disability parking permit and being young, and not sometimes visibly seen as Disabled, I have copped a lot of RUDE people. So next time you see a ‘perfectly’ fine abled body person park in a disability park, check yourself!